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ISBN 13: 9789811577277
Author: Martina von Arx, Dana Mahr
Are you your genes? De-Sequencing: Identity Work with Genes explores this perplexing question, showing how different forms of knowledge must be contextualized to become meaningful. It is generally assumed that the genomic sequence adds up to the identity-forming material life is made of. Yet identity cannot itself adopt the form of a sequence. As the authors in this volume show, the genome must be ‘de-sequenced’ by human language to render it interpretable and meaningful in a social context. The book unpacks this type of ‘sequence-speech’ in engaging detail, adopting a personal, social, cultural, and bio-political approach to examine the transformation of human identity and reflexivity in the era of genetic citizenship.
Part I. Science and Medicine
2. Personalised Medicine: Problems of Translation into the Human Domain
3. Contemporary Future Parents: From Tentative Pregnancy and Moral Pioneers to Educated Moral Gamblers
Part II. Philosophy of Biology
4. Developmental Narratives: How We Think that Organisms Use Genetic and Epigenetic Information
5. Epigenetics, Responsiveness and Embodiment
6. Space and Time of Developmental Narratives
Part III. Societal Contexts
7. Data Mining in Systems Medicine and the Project of Solidarity: The Interface of Genomics and Society Revisited
8. Experimenting with Solidarity in Biomedicine: From Practice to Principle?
9. The Moral Making of Data-Rich Personalised Medicine
Part IV. Families
10. An Ordering of Letters: My Own Personal Genome
11. Illness in the World of the Genome
12. How Personal Is the Genome? The Shadow of Genetic Predictions
Part V. Individual Experiences
13. Lived Genome Phenomenology: Exploring the Genetics of Chronic Inflammatory Bowel Diseases
14. Existential Storytelling in a Genomic World
15. Sudden Evolutionary Changes in Palearctic Warblers
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Tags: Martina von Arx, Dana Mahr, Sequencing, Genes