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5.0
88 reviewsThe long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care & illness, showing us that sickness is a fact of life.
In the wake of the 2014 Ferguson riots, & sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can't get out of bed? It was not long before this essay, "Sick Woman Theory", became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism—a system that limits our worth to the productivity of our bodies—we must reach for the revolutionary act of caring for ourselves & others.
How to Tell When We Will Die expands upon Hedva's paradigm-shifting perspective in a series of slyly subversive & razor-sharp essays that range from the...